All NZCR staff and contracted third-parties are bound by legal and ethical obligations concerning trial participants’ privacy and confidentiality.
NZCR abides to the New Zealand Privacy Act 2020 and the Health Information Privacy Code 2020.
When you browse our web site, you do so anonymously. We don’t collect personally identifiable information from our website. Standard information about your visit is collected, such as time, date and URL request (the web page you arrived from) via our web servers. This information cannot be used to identify you as an individual. This information is recorded by all web servers and is used to improve the functionality, structure and performance of our website.
Our site uses Google Analytics to analyse non-identifiable web traffic data to improve our services and the use which visitors make of this website.
This means it collects third party cookies on data related to:
Personal information is information that can identify you as an individual. The personal information that is collected via our website is voluntary. When you register your interest in a clinical trial by completing our registration form, personal and health information is collected.
The registration form includes:
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If you participate in a clinical trial there may be reimbursement for your time during the trial, travel and/or parking. The details for such reimbursement are submitted through our website. These forms include collection of:
Where NZCR collects personal information from you by means of this website including the registration of your interest in participating in a clinical trial, this information will be used for the purposes of:
If you change your mind and do not wish to take part in a clinical trial, please refer to section 9.
Information may also be collected from organisations wishing to engage NZCR’s services in respect of research and clinical trial activities.
Where the Privacy Act and Health Information Privacy code permit it, we may disclose personal information you provide to us for the following purposes:
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We take seriously the security of the information we collect. The storage of your personal information may be on paper or in a computer database that is confidential and access controlled. We may also use third party databases and services where your personal information may be stored.
We will take all reasonable steps to protect personal information that is held by us from unauthorised access, use, disclosure, alteration, or destruction. However, we cannot guarantee that the measures we maintain will ensure the security of personal information.
No data transmission over the internet can be guaranteed to be 100 per cent secure. As a result, while we strive to protect user’s personal information, we cannot ensure or warrant the security of any information transmitted to or from our website, and users do so at their own risk.
You may request access to, or correction of, personal information we hold about you by emailing the NZCR Privacy Officer at firstname.lastname@example.org.
To ensure that the information we hold about you is accurate and current, please notify us of any changes to your information as soon as possible.
A cookie already set by Google Analytics can be deleted at any time via your internet browser.
If you have registered your interest in a clinical trial but have not taken part in a trial (i.e. you have not signed a consent form), you have the right to request your personal information to be removed from our database.
If you no longer wish to have your personal details on our recruitment database, please contact email@example.com for removal. Please note that this is a manual process and may take up to 5 business days to complete.
If you have participated in a clinical trial (i.e. you have signed a consent form), the information you provide to us will be held by us in accordance with clinical trial requirements (as described in the trial specific Participant Information Sheet and Consent Form (PISCF)) and cannot be removed or deleted upon your request. We may also need to contact you in the future if there is any new information about the trial you participated in. This information that we collect from you must be kept for at least 15 years from the end of the trial or longer (e.g., 25 years) if required by the trial sponsor (the company organising or paying for the trial).
If you no longer wish to receive emails about future trials, please contact firstname.lastname@example.org for removal from the mailing list. Please note that this is a manual process and may take up to 5 business days to complete.
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Equally, if you would like access to the personal information we hold about you, or to have your name removed from our database, please refer to sections 8 and 9.
New Zealand Clinical Research (NZCR) provides state of the art research facilities and the expertise to conduct complex early phase clinical research in healthy participant and patient populations.